Welcome, the McGoogan Library has compiled this list of recommended resources as a guide meant to support self-directed learning, education, and research for those who want to learn more about disability. It is our sincere hope that this list of resources may assist us and the communities that we serve to better address issues faced by individuals with disabilities.
Please note that this list of resources is a work in progress, it is not comprehensive and your suggestions and feedback are welcome. Feel free to email any suggestions to Kim Harp, Education and Research Services Librarian, at kimberly.harp@unmc.edu.
(un)Learning Disability
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(1-user) How do students confront and resolve conflicting messages about their intelligence and academic potential, particularly when labeled with social and learning disabilities? How does disability become "disablement" when negative attitudes and disparaging perceptions of ability position students as outsiders? Following the lives of adolescents at home and at school, the author makes visible the disabling language, contextual arrangements, and unconscious social practices that restrict learning regardless of special education services. She also showcases how young people resist disablement to transform their worlds and pursue pathways most important to them. Educators and scholars can use this important resource to recognize and change disabling practices that are often taken for granted as a natural part of schooling. Book Features: Offers concrete ways that students, schools, and teachers can unlearn disabling behaviors. Illuminates how social processes of disablement take place, rather than simply describing their influence. Looks at settings where students encounter more flexible ideas of ability and intelligence.
Academic Ableism
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Academic Ableism brings together disability studies and institutional critique to recognize the ways that disability is composed in and by higher education, and rewrites the spaces, times, and economies of disability in higher education to place disability front and center. For too long, argues Jay Timothy Dolmage, disability has been constructed as the antithesis of higher education, often positioned as a distraction, a drain, a problem to be solved. The ethic of higher education encourages students and teachers alike to accentuate ability, valorize perfection, and stigmatize anything that hints at intellectual, mental, or physical weakness, even as we gesture toward the value of diversity and innovation. Examining everything from campus accommodation processes, to architecture, to popular films about college life, Dolmage argues that disability is central to higher education, and that building more inclusive schools allows better education for all.
Being Heumann
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A Publishers Weekly Best Book of the Year for Nonfiction One of the most influential disability rights activists in US history tells her personal story of fighting for the right to receive an education, have a job, and just be human. A story of fighting to belong in a world that wasn't built for all of us and of one woman's activism--from the streets of Brooklyn and San Francisco to inside the halls of Washington--Being Heumann recounts Judy Heumann's lifelong battle to achieve respect, acceptance, and inclusion in society. Paralyzed from polio at eighteen months, Judy's struggle for equality began early in life. From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that fundamentally improved rights for disabled people. As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples' rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act. Candid, intimate, and irreverent, Judy Heumann's memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.
Claiming Disability
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A comprehensive assessment of the field of Disability Studies that presents beyond the medical to dig into the meaning From public transportation and education to adequate access to buildings, the social impact of disability has been felt everywhere since the passage of the Americans with Disabilities Act in 1990. And a remarkable groundswell of activism and critical literature has followed in this wake. Claiming Disability is the first comprehensive examination of Disability Studies as a field of inquiry. Disability Studies is not simply about the variations that exist in human behavior, appearance, functioning, sensory acuity, and cognitive processing but the meaning we make of those variations. With vivid imagery and numerous examples, Simi Linton explores the divisions society creates--the normal versus the pathological, the competent citizen versus the ward of the state. Map and manifesto, Claiming Disability overturns medicalized versions of disability and establishes disabled people and their allies as the rightful claimants to this territory.
Disability, Culture and Identity
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First published in 2003. Routledge is an imprint of Taylor & Francis, an informa company.
Disability Hate Speech
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This book, the first to specifically focus on disability hate speech, explains what disability hate speech is, why it is important, what laws regulate it (both online and in person) and how it is different from other forms of hate. Unfortunately, disability is often ignored or overlooked in academic, legal, political, and cultural analyses of the broader problem of hate speech. Its unique personal, ideological, economic, political and legal dimensions have not been recognized - until now. Disability hate speech is an everyday experience for many people, leaving terrible psycho-emotional scars. This book includes personal testimonies from victims discussing the personal impact of disability hate speech, explaining in detail how such hatred affects them. It also presents legal, historical, psychological, and cultural analyses, including the results of the first surveys and in-depth interviews ever conducted on this topic in some countries. This book makes a vital contribution to understanding disability hatred and prejudice, and will be of particular interest to those studying issues associated with hate speech, disability, psychology, law, and prejudice.
A Disability History of the United States
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The first book to cover the entirety of disability history, from pre-1492 to the present Disability is not just the story of someone we love or the story of whom we may become; rather it is undoubtedly the story of our nation. Covering the entirety of US history from pre-1492 to the present, A Disability History of the United States is the first book to place the experiences of people with disabilities at the center of the American narrative. In many ways, it's a familiar telling. In other ways, however, it is a radical repositioning of US history. By doing so, the book casts new light on familiar stories, such as slavery and immigration, while breaking ground about the ties between nativism and oralism in the late nineteenth century and the role of ableism in the development of democracy. A Disability History of the United States pulls from primary-source documents and social histories to retell American history through the eyes, words, and impressions of the people who lived it. As historian and disability scholar Nielsen argues, to understand disability history isn't to narrowly focus on a series of individual triumphs but rather to examine mass movements and pivotal daily events through the lens of varied experiences. Throughout the book, Nielsen deftly illustrates how concepts of disability have deeply shaped the American experience-from deciding who was allowed to immigrate to establishing labor laws and justifying slavery and gender discrimination. Included are absorbing-at times horrific-narratives of blinded slaves being thrown overboard and women being involuntarily sterilized, as well as triumphant accounts of disabled miners organizing strikes and disability rights activists picketing Washington. Engrossing and profound, A Disability History of the United States fundamentally reinterprets how we view our nation's past- from a stifling master narrative to a shared history that encompasses us all.
Disability in Higher Education
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Create campuses inclusive and supportive of disabled students, staff, and faculty Disability in Higher Education: A Social Justice Approach examines how disability is conceptualized in higher education and ways in which students, faculty, and staff with disabilities are viewed and served on college campuses. Drawing on multiple theoretical frameworks, research, and experience creating inclusive campuses, this text offers a new framework for understanding disability using a social justice lens. Many institutions focus solely on legal access and accommodation, enabling a system of exclusion and oppression. However, using principles of universal design, social justice, and other inclusive practices, campus environments can be transformed into more inclusive and equitable settings for all constituents. The authors consider the experiences of students, faculty, and staff with disabilities and offer strategies for addressing ableism within a variety of settings, including classrooms, residence halls, admissions and orientation, student organizations, career development, and counseling. They also expand traditional student affairs understandings of disability issues by including chapters on technology, law, theory, and disability services. Using social justice principles, the discussion spans the entire college experience of individuals with disabilities, and avoids any single-issue focus such as physical accessibility or classroom accommodations. The book will help readers: Consider issues in addition to access and accommodation Use principles of universal design to benefit students and employees in academic, cocurricular, and employment settings Understand how disability interacts with multiple aspects of identity and experience. Despite their best intentions, college personnel frequently approach disability from the singular perspective of access to the exclusion of other important issues. This book provides strategies for addressing ableism in the assumptions, policies and practices, organizational structures, attitudes, and physical structures of higher education.
The Disability Pendulum
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Signed into law in July 1990, the Americans with Disabilities Act (ADA) became effective two years later, and court decisions about the law began to multiply in the middle of the decade. In The Disability Pendulum, Ruth Colker presents the first legislative history of the enactment of the ADA in Congress and analyzes the first decade of judicial decisions under the act. She assesses the success and failure of the first ten years of litigation under the ADA, focusing on its three major titles: employment, public entities, and public accommodations. The Disability Pendulum argues that despite an initial atmosphere of bipartisan support with the expectation that the ADA would make a significant difference in the lives of individuals with disabilities, judicial decisions have not been consistent with Congress' intentions. The courts have operated like a pendulum, at times swinging to a pro-disabled plaintiff and then back again to a pro-defendant stance. Colker, whose work on the ADA has been cited by the Supreme Court, offers insightful and practical suggestions on where to amend the act to make it more effective in defending disability rights, and also explains judicial hostility toward enforcing the act.
Enabling Acts
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The first significant book on the history and impact of the ADA-the "eyes on the prize" moment for disability rights The Americans with Disabilities Act (ADA) is the widest-ranging and most comprehensive piece of civil rights legislation ever passed in the United States, and it has become the model for disability-based laws around the world. Yet the surprising story behind how the bill came to be is little known. In this riveting account, acclaimed disability scholar Lennard J. Davis delivers the first behind-the-scenes and on-the-ground narrative of how a band of leftist Berkeley hippies managed to make an alliance with upper-crust, conservative Republicans to bring about a truly bipartisan bill. Based on extensive interviews with all the major players involved including legislators and activists, Davis recreates the dramatic tension of a story that is anything but a dry account of bills and speeches. Rather, it's filled with one indefatigable character after another, culminating in explosive moments when the hidden army of the disability community stages scenes like the iconic "Capitol Crawl" or an event some describe as "deaf Selma," when students stormed Gallaudet University demanding a "Deaf President Now!" From inside the offices of newly formed disability groups to secret breakfast meetings surreptitiously held outside the White House grounds, here we meet countless unsung characters, including political heavyweights and disability advocates on the front lines. "You want to fight?" an angered Ted Kennedy would shout in an upstairs room at the Capitol while negotiating the final details of the ADA. Congressman Tony Coelho, whose parents once thought him to be possessed by the devil because of his epilepsy, later became the bill's primary sponsor. There's Justin Dart, adorned in disability power buttons and his signature cowboy hat, who took to the road canvassing fifty states, and people like Patrisha Wright, also known as "The General," Arlene Myerson or "the brains," "architect" Bob Funk, and visionary Mary Lou Breslin, who left the hippie highlands of the West to pursue equal rights in the marble halls of DC. Published for the twenty-fifth anniversary of the ADA, Enabling Acts promises to ignite readers in a discussion of disability rights by documenting this "eyes on the prize" moment for tens of millions of American citizens.
Intersectionality and Higher Education
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Though colleges and universities are arguably paying more attention to diversity and inclusion than ever before, to what extent do their efforts result in more socially just campuses? Intersectionality and Higher Education examines how race, ethnicity, class, gender, sexuality, sexual orientation, age, disability, nationality, and other identities connect to produce intersected campus experiences. Contributors look at both the individual and institutional perspectives on issues like campus climate, race, class, and gender disparities, LGBTQ student experiences, undergraduate versus graduate students, faculty and staff from varying socioeconomic backgrounds, students with disabilities, undocumented students, and the intersections of two or more of these topics. Taken together, this volume presents an evidence-backed vision of how the twenty-first century higher education landscape should evolve in order to meaningfully support all participants, reduce marginalization, and reach for equity and equality.
Mad at School
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"A very important study that will appeal to a disability studies audience as well as scholars in social movements, social justice, critical pedagogy, literacy education, professional development for disability and learning specialists in access centers and student counseling centers, as well as the broader domains of sociology and education." ---Melanie Panitch, Ryerson University "Ableism is alive and well in higher education. We do not know how to abandon the myth of the 'pure (ivory) tower that props up and is propped up by ableist ideology.' . . . Mad at School is thoroughly researched and pathbreaking. . . . The author's presentation of her own experience with mental illness is woven throughout the text with candor and eloquence." ---Linda Ware, State University of New York at Geneseo Mad at School explores the contested boundaries between disability, illness, and mental illness in the setting of U.S. higher education. Much of the research and teaching within disability studies assumes a disabled body but a rational and energetic (an "agile") mind. In Mad at School, scholar and disabilities activist Margaret Price asks: How might our education practices change if we understood disability to incorporate the disabled mind? Mental disability (more often called "mental illness") is a topic of fast-growing interest in all spheres of American culture, including popular, governmental, aesthetic, and academic. Mad at School is a close study of the ways that mental disabilities impact academic culture. Investigating spaces including classrooms, faculty meeting rooms, and job searches, Price challenges her readers to reconsider long-held values of academic life, including productivity, participation, security, and independence. Ultimately, she argues that academic discourse both produces and is produced by a tacitly privileged "able mind," and that U.S. higher education would benefit from practices that create a more accessible academic world. Mad at School is the first book to use a disability-studies perspective to focus on the ways that mental disabilities impact academic culture at institutions of higher education. Individual chapters examine the language used to denote mental disability; the role of "participation" and "presence" in student learning; the role of "collegiality" in faculty work; the controversy over "security" and free speech that has arisen in the wake of recent school shootings; and the marginalized status of independent scholars with mental disabilities. Margaret Price is Associate Professor of English at Spelman College.
Negotiating Disability
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Disability is not always central to claims about diversity and inclusion in higher education, but should be. This collection reveals the pervasiveness of disability issues and considerations within many higher education populations and settings, from classrooms to physical environments to policy impacts on students, faculty, administrators, and staff. While disclosing one's disability and identifying shared experiences can engender moments of solidarity, the situation is always complicated by the intersecting factors of race and ethnicity, gender, sexuality, and class. With disability disclosure as a central point of departure, this collection of essays builds on scholarship that highlights the deeply rhetorical nature of disclosure and embodied movement, emphasizing disability disclosure as a complex calculus in which degrees of perceptibility are dependent on contexts, types of interactions that are unfolding, interlocutors' long- and short-term goals, disabilities, and disability experiences, and many other contingencies.
No Pity
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People with disabilities forging the newest and last human rights movement of the century.
Nothing about Us Without Us
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James Charlton has produced a ringing indictment of disability oppression, which, he says, is rooted in degradation, dependency, and powerlessness and is experienced in some form by five hundred million persons throughout the world who have physical, sensory, cognitive, or developmental disabilities. Nothing About Us Without Us is the first book in the literature on disability to provide a theoretical overview of disability oppression that shows its similarities to, and differences from, racism, sexism, and colonialism. Charlton's analysis is illuminated by interviews he conducted over a ten-year period with disability rights activists throughout the Third World, Europe, and the United States. Charlton finds an antidote for dependency and powerlessness in the resistance to disability oppression that is emerging worldwide. His interviews contain striking stories of self-reliance and empowerment evoking the new consciousness of disability rights activists. As a latecomer among the world's liberation movements, the disability rights movement will gain visibility and momentum from Charlton's elucidation of its history and its political philosophy of self-determination, which is captured in the title of his book. Nothing About Us Without Us expresses the conviction of people with disabilities that they know what is best for them. Charlton's combination of personal involvement and theoretical awareness assures greater understanding of the disability rights movement.
Occupying Disability: Critical Approaches to Community, Justice, and Decolonizing Disability
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This book explores the concept of "occupation" in disability well beyond traditional clinical formulations of disability: it considers disability not in terms of pathology or impairment, but as a range of unique social identities and experiences that are shaped by visible or invisible diagnoses/impairments, socio-cultural perceptions and environmental barriers and offers innovative ideas on how to apply theoretical training to real world contexts. Inspired by disability justice and "Disability Occupy Wall Street / Decolonize Disability" movements in the US and related movements abroad, this book builds on politically engaged critical approaches to disability that intersect occupational therapy, disability studies and anthropology. "Occupying Disability" will provide a discursive space where the concepts of disability, culture and occupation meet critical theory, activism and the creative arts. The concept of "occupation" is intentionally a moving target in this book. Some chapters discuss occupying spaces as a form of protest or alternatively, protesting against territorial occupations. Others present occupations as framed or problematized within the fields of occupational therapy and occupational science and anthropology as engagement in meaningful activities. The contributing authors come from a variety of professional, academic and activist backgrounds to include perspectives from theory, practice and experiences of disability. Emergent themes include: all the permutations of the concept of "occupy," disability justice/decolonization, marginalization and minoritization, technology, struggle, creativity and change. This book will engage clinicians, social scientists, activists and artists in dialogues about disability as a theoretical construct and lived experience.
Queer Crips
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Get an inside perspective on life as a disabled gay man! Queer Crips: Disabled Gay Men and Their Stories reverberates with the sound of "cripgay" voices rising to be heard above the din of indifference and bias, oppression and ignorance. This unique collection of compelling first-person narratives is at once assertive, bold, and groundbreaking, filled with characters--and character. Through the intimacy of one-on-one storytelling, gay men with mobility and neuromuscular disorders, spinal cord injury, deafness, blindness, and AIDS, fight isolation from society--and each other--to establish a public identity and a common culture. Queer Crips features more than 30 first-hand accounts from a variety of perspectives, illuminating the reality of the everyday struggle disabled gay men face in a culture obsessed with conformist good looks. Themes include rejection, love, sex, dating rituals, gaycrip married life, and the profound difference between growing up queer and disabled, and suffering a life-altering injury or illness in adulthood. Co-edited by Bob Guter, creator and editor of the webzine BENT: A Journal of Cripgay Voices, the book includes: two performance pieces from acclaimed author and actor Greg Walloch poetry from Chris Hewitt, Joel S. Riche, Raymond Luczak, Mark Moody, and co-editor John Killacky essays from BENT contributors Blaine Waterman, Raymond J. Aguilera, Danny Kodmur, Thomas Metz, Max Verga, and Eli Clare interviews with community activist Gordon Elkins and Alan Sable, one of the first self-identified gay psychotherapists in the United States and much more! Queer Crips is a forum for neglected cripgay voices speaking words that are candid, edgy, bold, dreamy, challenging, and sexy. The book is essential reading for academics and students working in lesbian and gay studies, and disability studies, and for anyone who's ever visited the place where queerness and disability meet.
Stigma and Prejudice
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In this innovative title, the authors describe unique patient populations affected by stigma and prejudice and the prevalence of these issues to all healthcare providers. Each chapter covers the forms of prejudice and stigma associated with minority statuses, including religious minorities, the homeless, as well as those stigmatized by medical serious medical conditions, such HIV/AIDS, obesity, and substance misuse disorders. The chapters focus on the importance of recognizing biological differences and similarities within such groups and describes the challenges and best practices for optimum healthcare outcomes. The text describes innovative ways to connect in a clinical setting with people of diverse backgrounds. The text also covers future directions and areas of research and innovative clinical work being done. Written by experts in the field, Stigma and Prejudice is an excellent resource for psychiatrist, psychologists, general physicians, social workers, and all other medical professionals working with stigmatized populations.
